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Me, Myself and PDA
Hello, my name is Julia and I’m an adult living with a diagnosis of Pathological Demand Avoidance (PDA). I also have a diagnosis of ADHD and Psychotic Episodes. PDA is a lifelong Pervasive Developmental Disorder and was first described by the late Prof. Elizabeth Newson in 1980. PDA is an Autistic Spectrum Disorder (ASD). Despite PDA being older than me (just) there are still massive gaps in its recognition, peoples’ understanding and its diagnosis by professionals. I’m one of the lucky ones and this is my story…….
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Me, Myself and PDA 
I have a 12 year old daughter who has just been diagnosed with PDA. I am doing everything I can for her and I love her very much. I worry that she will not develop meaningful friendships or have the capacity for employment as her communication with others can be harsh and self focused. However, I am wondering what to expect as she grows up and becomes an adult. I know everyone is different and PDA, in terms of its symptoms and severity is likely to differ from person to person. But can you tell me what kind of future she might have as an adult?
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Hi my son has had diagnosis of ASD ADHD challenging behaviour and defiant behaviour and seizures from age of 7’but now he’s 16 with no post 16 plan and schools and social sevices believe he is choosing as they have no understanding of him but I think he has PDA and not ADHD I asked his Docters does he have PDA they said yes it’s in his ASD how do I get across that a lot of his problems is pDA and he is not choosing I have just started EHCP after years of trying to get one for him and what’s the best way forward for future to get him the right help
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If I were in your shoes I would contact the National Autistic Society. They have a lot of information and resources about planning for the future. Getting the right support is vital. I downloaded a document that I completed that tells anyone looking after me in a medical emergency how to best treat me. It was a simple thing to complete and then I just gave it to my doctor who put the info on the system. Now, if I were to be admitted to hospital, when they entered my details into the system it would flag up that I have an ASD, just like it would if I was allergic to a medication. I got it from the NAS.
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My advice to you would be to arm yourself with evidence that you can show to them. Also have you spoken to him about PDA in depth? How does he feel? It might be useful for you to join a support group like the ones I help to run. http://www.facebook.com/groups/pdasupport – I’ll have a think over the weekend and see if I can come with any other ideas.
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My son is 20 years old and he refuses to see a doctor. How can i help him see a doc.
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Hi. If you email me at juliadaunt@btinternet.com we can discuss things. Julia x
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