INFORMATION & SUPPORT


Here you will find a list of support groups, websites, blogs & other useful resources on PDA.

 

FACEBOOK SUPPORT

The first & biggest international support group for parents & carers – The PDA Group

Support group for adults with PDA & other ASD’s – Adult PDA Support Network

Support & advice for those working with children & adults with PDA – PDA Professionals Group

Support for parents & carers who parent autonomously – PDA Autonomous Parenting Support

Support for parents & carers of teenagers with PDA – PDA Teen Support

 

WEBSITES & ONLINE FORUMS

www.pdakids.org – Online support forum for children with PDA

www.pdasociety.org.uk – Online support & advice, resources & useful links

www.thepdaresource.com – Resources & useful links

www.autism.org.uk – Support & advice from the National Autistic Society

 www.norsaca.org.uk – Information on diagnosis at The Elizabeth Newson Centre

 

OTHER BLOGS

www.understandingpda.com

www.dinkyandme.wordpress.com

www.stephstwogirls.co.uk

www.whatitmeanstpfeel.wordpress.com

www.duckandme.blogspot.co.uk

www.spectrumbloggers.wordpress.com

www.autismamazon.wordpress.com

 

BOOKS & PUBLICATIONS

Understanding Pathological Demand Avoidance Syndrome in Children by Phil Christie, Ruth Fidler, Margaret Duncan & Zara Healy

Ultraviolet Voices – chapter 14 is written by an adult with PDA

Can I tell you about Pathological Demand Avoidance Syndrome?: A guide for friends, family & professionals by Ruth Fidler & Phil Christie

My Daughter Is Not Naughty by Jane Sherwin

 

RESEARCH

Liz O’Nions’ research

 

OTHER USEFUL LINKS

The Lorna Wing Centre – Information on diagnosis for children & adults

 

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